Wednesday, February 9, 2011

Prayer warriors needed!!!! Please pray for EllyAnnah

Hello everyone,

PLEASE PRAY for baby EllyAnnah, and infant with Prader-Willi Syndrome.  She was born 8 week premature in late July 2010, spent about 9 weeks in the NICU and was finally able to go home in late September.  Due to illness Elly was rushed back to the hospital on December 7, was discharged Dec 18, was rushed back on Dec 30, and is still there.  In recent days her condition has taken a turn for the worse, as she has had high fevers, low blood-oxygen levels, and high respirations-per-minute numbers.  [Update: She has spiked a fever again today 2/10] The right ventricle in her heart is now having trouble because Elly has decreased ability to expel CO2. She is battling pneumonia and a staph infection.   Her progress is slowed due to complications of the syndrome.  Contracting pneumonia is especially dangerous for our children with the syndrome.  Please keep EllyAnnah, her mother, and all their family in your prayers.  Please keep all individuals with Prader-Willi Syndrome in your I've said before, the syndrome is extremely challenging and, while the general public may not know much about it (yet), our kids still need your much-appreciated support and praryers.

Thank you,


Rachel said...

This is why blogs are so great! Word spreads quickly and prayers are sent!
Hope you feel better soon too.

Janis said...

I am so worried about Elly. She has had such a rough start. I will keep praying. What an ordeal, so stressful.

Lauren said...

I'm praying Jen, I am praying.

D. S. Walker said...

I'll add her to my prayers and her family too.

Territory Mom said...


phaetalle said...

I've never heard of that... Scary. I will be praying for her.
Thanks for checking out my site - returning the favor from the Mom Loop.

Diplo_Daddy said...

Sending my best to little EllyAnnah.